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Stories of Interest

And they call some of these people "retarded"...

What matters in this life is more than winning for ourselves. What matters in this life is helping others win, even if it means slowing down and changing our course.

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Arthur's Story

My name is Arthur Streisfeld. I am a 54 year old man with a developmental disability. I was 52 when I got involved with self-determination. Self-determination changed my life.

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Autism in Paradise

Having just returned from a short trip to Hawaii with my son Matthew, I feel compelled to share with you an experience I had on the remote, sparsely populated East Shore of Oahu, an experience that documents and illustrates that there is serious trouble in paradise too.

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Good Staff, Bad Staff,
No Staff At All

Jim Beaty and Nathan Perry are two consumers of the services provided by direct support professionals in the community. When asked to describe the impact of direct service workforce development on their lives, they shared the following thoughts.

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Katie's Sojourn to Full Inclusion
Upon moving to Pennsylvania we ran into too many bureaucratic roadblocks to Katie's inclusive education to mention. The major roadblocks were an educational system not prepared to meet the individual needs of all of its students.

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Psychiatric Disability: Myths and Realities

As someone who was labeled with a psychiatric disability, and who has recovered to lead a full and satisfying life, I am frequently assumed to be somehow atypical, or told that I was "misdiagnosed." The fact is that people who have been labeled with "schizophrenia," "manic-depression/bi-polar illness," "clinical depression," and other severe psychiatric diagnoses are capable of complete recovery and achieving self-determination in their lives. Like people with other disabilities, sometimes the biggest thing that holds us back are negative attitudes.

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The Language Of "Us" and "They"


We like things.
       They fixate on objects.

We try to make friends.
       They display attention-seeking behaviors.

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God, Do You Care?

This article was first written as a letter to some parents of children with Down Syndrome. I would really rather sit down over a cup of coffee and just open my Bible and talk with someone in person, but obviously that might be very difficult to manage.

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Publicly-owned Nursing Homes - A Strategy.

Below is a state-by-state breakdown of nursing homes that are "publicly owned," either by your State, your county or your city. The Olmstead decision held that unnecessary segregation in institutions was discrimination and a violation of the ADA.

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Self Determination Is..

  • Living a life that is always changing and growing, never fixed.
     
  • Deciding what I want in life and setting my own goals.

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Beyond Programs: A Parable

In the beginning, there was placement, and lo we were happy when it happened, as placement was not mandated for adults who happened to experience severe disabilities. And so, we said, this is good.  And placements multiplied and filled the earth.

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